A fairly random collection of resources I think you may find useful
Action for M.E. One of the two national charities in the UK providing campaigning and support
M.E. Association One of the two national charities in the UK providing campaigning and support.
The Workwell Foundation, an American M.E. research unit.
Professor Mark VanNess of the Workwell Foundation on exercise and M.E. and why graded exercise programmes don’t work.